As one of the largest and most trusted kids’ health charities in the country, Sydney Children’s Hospitals Foundation exists to promote the charitable investment in the prevention and management of childhood illnesses.
In 2022, SCHF was proud to complete the pilot of our innovative program called Greenlight. The trial helped identify high impact, early-stage research ideas from clinicians across Sydney Children’s Hospitals Network and connect them with donors from our Movement of Many, who were inspired to bring them to life with philanthropic support.
It was through this program that SCHF first heard about Dr Jagdev Singh’s (trial lead and Paediatric Respiratory and Sleep Consultant at The Children’s Hospital at Westmead) groundbreaking idea to help treat kids with cystic fibrosis, and together, we made it a reality.
In FY23, SCHF was thrilled to receive a grant from Cure4 Cystic Fibrosis (Cure4CF) that awarded Dr Singh with $500,000 over two years. This extraordinary philanthropic gift meant Dr Singh could investigate the use of good viruses to treat an infection in kids with cystic fibrosis (CF) – a process called phage therapy.
CF is an inherited genetic disorder that causes damage to the lungs, digestive system and other organs in the body. For kids living with CF, it can sometimes feel like they’re breathing through a straw and their weakened immune systems put them at risk of infections like pseudomonas aeruginosa.
The common bacteria are found in damp places such as showers and swimming pools. While the infection doesn’t have a lasting impact on healthy individuals, it can be particularly dangerous for kids with CF.