Helping Children Thrive with Metabolic Conditions
Understanding Inborn Errors of Metabolism: What They Are and How They’re TreatedFundraising for the Metabolic & Multidisciplinary Team!
Hello, my name is Damien, and I’m the proud father of two amazing children, Winter and Riley. Both of my children live with a rare genetic disorder called Mucopolysaccharidosis Type I (MPS I) – Hurler Syndrome.
This condition affects many parts of their bodies and requires the support of multiple specialists, including Neurology, Cardiology, Respiratory Medicine, Orthopaedics (spine, hips, legs, hands, and feet), Bone Marrow Transplant, Dentistry, Ophthalmology, and General Medicine.
At the heart of their care is the incredible Metabolic / Multidisciplinary Team at Westmead Children’s Hospital. This team coordinates between all these specialties, guiding and supporting both the doctors and families through the complex and challenging journey that MPS I brings. They are the experts who understand the full picture of what children like Winter and Riley face — and they make sure every child receives the best care possible.
However, this extraordinary team is in desperate need of more doctors and nurses to keep up with the growing number of children who depend on them. Each child with MPS requires constant monitoring, treatment adjustments, and specialized coordination — something only possible when the team has enough hands and resources.
How Your Donation Helps;
Every dollar raised will go directly toward:
Hiring additional metabolic doctors and nurses, so that no child has to wait for critical care or delayed appointments.
Supporting advanced training for specialists working with rare genetic disorders.
Funding essential equipment and research that improves diagnosis, treatment, and long-term quality of life for children with MPS and similar conditions.
Providing family support resources, ensuring parents and carers receive the guidance and mental health support they need.
Your generosity will make a direct and lasting difference — not just for Winter and Riley, but for every child under the care of Westmead’s Metabolic and Multidisciplinary Team.
Together, we can give these kids the chance to live brighter, healthier lives.
Please consider donating today — your kindness truly changes lives..
Your donation can make a real difference to the lives of children and families who depend on Westmead’s Metabolic and Multidisciplinary Team every single day.
Thank you for your kindness and support,
