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PANS Research

By James Fletcher

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Raised

$3,065

My Goal

$5,000

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I’ve chosen to raise much needed funds for Sydney Children's Hospitals Foundation

PANDAS/PANS is a form of acute onset brain inflammation that can cause devastating neuropsychiatric symptoms and movement disorders in children. It is rarely diagnosed, and little understood by the general medical community. Untreated, PANS can lead to a lifetime of mental health issues. However current research shows that the syndrome is treatable, and that early intervention provides the best long-term outcomes. This fundraiser supports PANS research being carried out by Professor Russell Dale and his team at Westmead Hospital for Children, Sydney Australia. http://www.kidsneuroscience.org.au/content/prof-russell-dale. All funds raised are transferred directly to Westmead Hospital for Children. Please help us to support Professor Dale's work now by sharing this campaign on social media or by donating. Thank you in advance for your generosity!

Facebook Parent/Carer Support Group

https://www.facebook.com/groups/pansparentsaustralianz/

 

Useful Web pages for families and clinicians:

https://www.pandasppn.org/

 

http://med.stanford.edu/pans.html

 

http://pandasnetwork.org/

 

https://www.nimh.nih.gov/.../public.../pandas/index.shtml

 

https://aspire.care/

 

Treatment Guidelines & associated research papers

1. From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome): Swedo et al (2012)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340334/

 

2. Clinical Evaluation of Youth with Pediatric Acute-Onset NeuropsychiatricSyndrome (PANS): Chang et al (2015)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340805/

 

3. Overview of Treatment of Pediatric Acute-Onset Neuropsychiatric Syndrome: Swedo et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2017.0042

 

4. Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part I—Psychiatric and Behavioral Interventions: Thienemann et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0145

 

5. Clinical Management of Pediatric Acute-Onset NeuropsychiatricSyndrome: Part II—Use of Immunomodulatory Therapies: Frankovich et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0148

 

6. Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part III—Treatment and Prevention of Infections: Cooperstock et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0151

7. IV Immunoglobulin Is Associated With Epigenetic, Ribosomal, and Immune Changes in Pediatric Acute-Onset Neuropsychiatric Syndrome:

Dale et al (2025)

https://www.neurology.org/doi/10.1212/NXI.0000000000200467

 

PANS Researchers & Clinicians: Videos

Lectures from the 2019 SANE PANS Conference-Sweden

https://sane.nu/sane-sweden-2019-pans-conference/

 

Dr Jennifer Frankovich (Stanford PANS Clinic) presents Pediatric Grand Rounds February 20, 2019: Infection, Inflammation, and Mental Health: Mapping the Connections.

https://video.dartmouth-hitchcock.org/.../Infe.../1_fdaot0ng

Thank you to my Supporters

$500

Sonia

$466.28

Anonymous

$350

Hair And Beyond By Jj

$206.20

Anonymous

$106.12

Wrona Family

$106.12

Anonymous

$106.12

Roopa

Thank you for doing this!

$106.12

Melora Keeley

$103.72

Emma Browne (friend Of Mairead)

$101

Christina P

$100

Anonymous

a small step towards hopefully bigger changes

$54.12

Heather Pettican

$54.12

Maple Allied Health

Thank you for doing such important work in advancing the knowledge about this difficult condition.

$54.12

Samara Brown

$54.12

Leanne Rath

Together we will get there 🤩

$54.12

Elite Biz

$54.12

Tori Haschka

$54.12

Nina Morley

$54.12

Sonia Zimmermann

Dear Prof Fletcher I hope you can map out this condition and it will help understanding Sufism better, too. Kind regards, Sonia Zimmermann

$54.12

Anonymous

$54.12

Kira And Ziggy

James you do amazing work for all of us. Thankyou x

$50

Professional Home Organiser- Little Strong Home

$33.15

Jacqui Lewis

Helping demystify this for clinicians and families is such a great initiative

$27.81

S & D Asnicar

Such good work. Tynan you Prof. Dale

$26.13

Rosa Kloczko

$22.58

Fadila Assoum

$22.58

Mel

Thank you for all your efforts and study

$22.58

Kathleen Rolfe

$11.65

Pam

$11.65

Emma Thompson

For Billy

$11.65

Whitney

$10.55

Anonymous

$10

Carla Mort

$6.13

Lily Holland

$6.13

Anonymous