May 31st, we are walking 65km to raise funds for the CF Clinic at Westmead Children's Hospital
May is Cystic Fibrosis (CF) Awareness Month.
Where to start...let's be real - CF is tough. As such we will be walking 65km to raise some funds, awareness and advocacy for our little munchkin and all the kids like her.
Harriet was diagnosed with a heel prick test at birth and we were notified around 5 weeks after she had lost some 25% of her bodyweight. Modern medicine being what it is, we were given Creon and away we went, putting weight back on and starting to digest the news and condition ourselves to the new routine.
Physio, nebulising medications, meds with food, regular blood tests and other appointments - you get the picture, it becomes normal, but it's a lot.
So, why not walk a lot - 65km's is a loose reference to '65 roses', which is symbolistic of Cystic Fibrosis as it is a phrase young children often say when trying to say the full condition. Harriet and everyone else living with CF have good days and tough days, days when the routine of treatments are the last thing you feel like doing, so rain, hail, blisters, or shine - we will push on and walk the 65km track - as we have done every year since Harriet was born and I can't see us stopping any time soon.
This year we welcome locals to join, if you are interested in joining send me a direct message for the details. We will finish at the park next to the Gosford Sailing Club / Gosford Swimming Pool for celebratory drinks, so we would also welcome people to come and say hello.
As always, thanks for your support! Any and all donations will go to our wonderful team at the CF Clinic at Westmead Children's Hospital, a deserving team who rely on fundraisers such as this to provide a safe, multi-disciplinary team for comprehensive CF support.
Tahlia, Mason & Harriet
Thank you to my Supporters
$211
Wayne & Annitta Curtis
$211
Amanda, Xav, Flynn And Miles
Such an important cause. You are a beautiful family and are truely wonderful parents. Goodluck for the walk tomorrow!
$211
Rosie And Nathan Walton
An incredible effort for such an important cause. Big hugs and all our love as you walk for Harriet and for everyone affected by cystic fibrosis. You’ve got this. We love you guys!
$200
Jodie & Andrew Pearson
A gorgeous family doing great work once again. Hope all goes well on the walk xx
$158.25
Mason, Tahlia & Harriet
Looking forward to the walk!
$110.72
Ashlee Law
$106.12
Helen Smith
Harriet is a lucky girl to have such wonderful parents I hope the walk goes well and you are not too jet lagged Love yas 🥰❤️
$106.12
Sandra Matsen
$106.12
Nicola Vincent
Sorry we’re a bit late! Hope it helps and you’re all amazing completing the walk and raising awareness and funding for the hospital xx
$106.12
Dan Cowell
$106.12
Julie Kent
Good luck xx
$106.12
Georgia Vincent
You’re doing an amazing job!
$106.12
Emly Cowell
So proud of you guys for committing to this massive task again!
$106.12
Matthew O'connell
Go Team! We've been thinking of you today on your walk. Love Alice, Matt, Ralph and Luna
$103.72
Mike Henderson
Great effort mate. Great cause 💪
$100
Tamara
So great guys! Xx
$65
Damian, Tahlea And Zoe
Great work guys!
$54.12
Andrew And Cathy X
$54.12
Rebecca Brown
$54.12
Sharon H
Mason thank you so much, body on the line stuff year in and out. We appreciate your efforts so much.
$54.12
Ashleigh Lucchese
Amazing stuff guys! ❤️
$43.60
Pam A
Congratulations to you all for such an amazing effort.
$27.81
Lauren Taylor
$27.81
Janelle Nigro
Well done to you all! Great effort for a deserving cause.
$27.81
Irene Kendell
$27.81
Mandy Maghirang
$27.81
Angelique Heaton
$27.81
Gary Fisher
Great work Dan and team. Hopefully no blisters this year . Cheers
$25
Shae Gowman
From another CF parent to another 🌹 Very inspiring! hope you get good weather
$25
Erin
$22.58
Clare Bailey
You’ll smash those 65kms team! Well done raising money for this cause, it’s incredible!!!
$16.80
Anonymous
Thank you for all your hard work fundraising from another CF family at Westmead ❤️🌹
$15
Cath Trudgett
xo
Good Luck 💖