PANS Research

By James Fletcher

I’ve chosen to raise much needed funds for Sydney Children's Hospitals Foundation

PANDAS/PANS is a form of acute onset brain inflammation that can cause devastating neuropsychiatric symptoms and movement disorders in children. It is rarely diagnosed, and little understood by the general medical community. Untreated, PANS can lead to a lifetime of mental health issues. However current research shows that the syndrome is treatable, and that early intervention provides the best long-term outcomes. This fundraiser supports PANS research being carried out by Professor Russell Dale and his team at Westmead Hospital for Children, Sydney Australia. http://www.kidsneuroscience.org.au/content/prof-russell-dale. All funds raised are transferred directly to Westmead Hospital for Children. Please help us to support Professor Dale's work now by sharing this campaign on social media or by donating. Thank you in advance for your generosity!

Facebook Parent/Carer Support Group

https://www.facebook.com/groups/pansparentsaustralianz/

Useful Web pages for families and clinicians:

https://www.pandasppn.org/

http://med.stanford.edu/pans.html

http://pandasnetwork.org/

https://www.nimh.nih.gov/.../public.../pandas/index.shtml

https://aspire.care/

Treatment Guidelines & associated research papers

1. From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome): Swedo et al (2012)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340334/

2. Clinical Evaluation of Youth with Pediatric Acute-Onset NeuropsychiatricSyndrome (PANS): Chang et al (2015)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340805/

3. Overview of Treatment of Pediatric Acute-Onset Neuropsychiatric Syndrome: Swedo et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2017.0042

4. Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part I—Psychiatric and Behavioral Interventions: Thienemann et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0145

5. Clinical Management of Pediatric Acute-Onset NeuropsychiatricSyndrome: Part II—Use of Immunomodulatory Therapies: Frankovich et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0148

6. Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part III—Treatment and Prevention of Infections: Cooperstock et al (2017)

https://www.liebertpub.com/doi/10.1089/cap.2016.0151

PANS Researchers & Clinicians: Videos

Lectures from the 2019 SANE PANS Conference-Sweden

https://sane.nu/sane-sweden-2019-pans-conference/

Dr Jennifer Frankovich (Stanford PANS Clinic) presents Pediatric Grand Rounds February 20, 2019: Infection, Inflammation, and Mental Health: Mapping the Connections.

https://video.dartmouth-hitchcock.org/.../Infe.../1_fdaot0ng

Thank you to my Supporters

$500

Sonia

$466.28

Anonymous

$100

Anonymous

a small step towards hopefully bigger changes