The Kids Brains Trust
I've set up this fundraising page to support the Neurology Department at the Sydney Children's Hospital, Randwick.
The amazing staff of the Neurology Department at the Sydney Children’s Hospital, Randwick have given my daughter back her life. The Kids Brains Trust is an opportunity to give something back to them, while helping other children and families.
When the radiologist discovered the unusually large brain tumour on the back of Daisy’s brain, our world fell apart. Initially, the neurologists feared the worst…it looked like a bad one.
The next day, our five-year-old underwent a six-hour operation at the Sydney Children’s Hospital, Randwick where the lesion was successfully removed by Dr Saaed Kohn. However, we had to wait 10 long days to confirm that the tumour was benign. No chemotherapy, no radiology.
That was the happiest day of my life.
Unfortunately, because of the tumour’s location in the cerebellum, Daisy was left with a severe case of Posterior Fossa Syndrome. This meant she was unable to walk, talk, or even feed herself.
Thankfully, the syndrome is slowly resolving. After two months of silence, Daisy’s first words were: I love you.
Paediatric Neurology needs vital funding to continue to deliver the best possible medical care for every child who requires treatment.
Brain tumours can affect any children at any time; even newborns. But, it’s not all bad news.
Many children such as Daisy survive brain tumours and other neurological conditions to live long, happy lives. Your donation will play a vital part in increasing the chances of that survival.
Thank you to my Supporters
The Dick And Pip Smith Foundation
Annandale Public School Spectacular
Richardson & Wrench Elizabeth Bay/ Potts Point
Ollie Hutchens (aps)
Jake & Evie Cameron
Dan Tarabay Mitchell
Gary Peer And Associates
Bin, Sarah, Eddie And Panda
Annandale Ps Spectacular