Sydney Marathon for TSC Research

Oskar's TSC fundraiser - Sydney Marathon

We're running the Sydney Marathon to raise money for TSC research!

Hi everyone,

Firstly, thanks for visiting my fundraising page and considering donating to a worthy cause.

Let me introduce my family and myself: My name is Ryan, my wife’s name is Miia, our eldest son is Oskar (almost 3), and Archer (14 months). Shortly after birth it was confirmed that Oskar has a condition called Tuberous Sclerosis Complex (TSC). 

Tuberous Sclerosis Complex is a rare multisystem genetic disease that causes benign tumours to grow in the brain and on other vital organs such as the kidneys, heart, liver, eyes, lungs, and skin. A combination of symptoms may include seizures, intellectual disability, developmental delay, behavioural problems, skin abnormalities, and lung and kidney disease.

We feel very lucky and grateful for the care we receive from the Tuberous Sclerosis Team, in particular Oskar's neurologist Dr John Lawson, at Sydney Children's Hospital. 

One of the hardest parts of caring for someone with TSC is the unknown. We don't how badly Oskar will be affected or what his future holds for him. He has suffered from seizures on a daily basis since he was 6 months old, which are caused by multiple tumours on his brain. So far in Oskar’s short life, he has endured multiple MRI's, EEG's, countless blood tests, a medical trial, numerous anti-seizure medications with varying success and now a Ketogenic diet to try to bring the seizures under control.

All of these efforts to help Oskar have been orchestrated by the amazing team at Sydney Children's Hospital and for this reason we'd like to fundraise for SCH to show our appreciation and to help their efforts in helping children and their families living with TSC.

In order to do this, my brother in law Andy and I have decided to run...jog...walk...crawl...cry...finish the Sydney Marathon on the 16th of September!

We really appreciate every donation, as it will benefit the team that cares for Oskar and all the other children suffering from TSC.


Thank you for your support!

Thank you to our Sponsors

$703

Kerfoot Pty Ltd

Well done Ryan. We wish you the best of luck in achieving your target.

$703

Kerfoot Company

$650

Kerfoot Company

$330

Richard Kerfoot

My Donation from the Cash Pot Draw

$300

Anonymous

$260

Josh Kerfoot

$208

Vikki Kennelly

Go team Oskar - sending you all lots of love in the day ❤️❤️

$200

Susan Rennie

$104

Ismo Niemi

Hope you have been in training. At least a little bit.

$104

Kate & Pete

Good job boys! Love you Oskar xx

$104

Stephen Pozoglou

$104

Lara Kepitis

Impressive! Have fun ?

$104

Annika Vasara

Good luck Andy and Ryan!! Go team Oskar!! ?

$104

Rhys Mcgovern

Good work you legends

$104

Elliot Guy

Legends ?

$104

Nathan Self

$104

Mel & Jimmy

That beautiful little boy of yours deserves a break. This is just a teeny contribution towards that but we hope you know we’re here supporting you always! An amazing cause and an amazing family! We love you Oscar! X

$104

Catherine O’malley

Go guys,great idea ! Cathy xox

$104

Mark & Arja Nyrhinen

go team Oskar.

$104

Jacob Smith

Good luck guys! Carn the blues!!!

$104

Gogroeny

There'd better be fluoro and sweatbands!

$104

Tanner Lightfoot

From Nat and I

$104

Suppala Family

Go team Oskar!

$104

Dawber Family

Love and best wishes.

$104

The Bowmers

Good luck bro!

$103

Chris Sinclair

Champ

$100

Andrew Blunden

$100

Kym Daniel

$100

Drew Ikin

Well done guys!!!

$100

Saila Vesa Karppinen

.

$100

Vivienne Traynor

$100

Philip Rennie

To my darling Oskar from Da

$78

Jenni Sawyer

? for Team Oskar

$52

Nakke Laukkanen

Go Team Oskar! Dig deep and bring on that Finnish "Sisu". You can do it!

$52

Emma Whiting

$52

Annika Vasara

$52

Annika Vasara

$52

Laura Woollacott

A good cause. Go team Oskar! Best of luck Ryan and Andy! X

$52

Samuel Rusanen

Good luck with the run Ryan and Andy!

$52

Niina, Shane, Elli & Tomi

Good luck! Great training for next Easter. Look out Samuel in the master jorksu.

$52

Villata Justin

Great work Ryan and Andrew.

$52

Jenni Sawyer

? for Team Oskar ?

$52

Mikko Myllymaki

Champ

$52

Vicky Mamas

$52

Madeline Mamas

$52

Colleen Ogle

Well done Ryan and Andy!! So proud of you raising funds for a very worthy cause.

$52

James Landis

Its always a marathon. No one ever skates for charity do they?

$52

Kerry Sutcliffe

Good Luck Ryan and Andy! Super proud of you guys. Love to Oskar and fam x

$52

Anonymous

Great effort

$52

Speedy

Good luck you bloody legend

$52

Dave Marven

I thought rhino and warnie struggle to run around four bases. Good luck boys - and keep smiling Oskar.

$52

Anonymous

$52

Lena Tobin

Good luck!

$52

Caroline Jessop

Wishing you all the best little man xxx Ryan the time to beat is 3:36, I’ll be there watching!! Good luck Ryan and Andy

$52

Erik Jortikka

Good work Turbo

$50

Daniela Ikin

Your a superhero!! Xx

$50

Colin O'dea

Good luck fellas. Oscar you're a little champion

$50

Lauren Blunden

$50

Allan Ratilainen

$50

Vicki Lohmann

$50

Kirk Sicard

$50

Rachel Barin Stephens

$50

Melissa Thatcher

$50

Sally Martin (ricker)

Well done Daddy! Oskar will be proud!

$50

Daria Mechtcheriakova

Ryan you better start training early and outrun everyone !! Great idea guys and wonderful cause. We are very happy to support you xo Love ? Dasha, Santi and Dylan

$50

Matthew Miller & Jennika Woerde

All the best and lots of love from Matt and Jennika xx

$50

Anonymous

$50

Brooklyn Chang

Lots of love to you all!! Good luck to you and Andy! Love the Changers

$50

Dave Steel

Good luck Ryano.

$50

Dave Steel

Good onya Andy

$50

Dave Steel

Good onya Andy

$50

Lance Cupido

Awesome stuff cuz! Best of luck with the jog/walk/crawl/cry.

$35

Anson Kolb

$31

Andrew Blunden

$30

Chris Pons

Good on you for doing this .

$26

Ryan Groenewald

$26

Team Goodrich

Run like the wind TeamOskar !!

$26

Kyle Mcgovern

Good job mate!

$26

Adam Landis

Use that fast-twitch muscle fiber!

$26

Marshall Kertesz

Hi Annika, I thought Andy can't take all the credit. Cheers Marshall

$26

Kim Smee

All the best xx

$26

Leo Chu

You can do it !!!!!!!

$26

Stephanie Marven

❤️

$26

Mia Dahl-spannari

Good on you guys and good luck!

$26

Anne Hede

we're cheering for you.

$26

Georgena Bowmer

$25

Brad Cluff

Legends

$25

Nick Sinclair

Go Team Groenewald ??‍♂️?? Just remember all the cross country training we did at school!

$25

Esme

Well done Ryan! Amazing effort!

$25

Laura Earl

Wishing Oskie's team the very best both in the marathon and in life!××

$25

Sinikka Raty

Go Oscars

$21

June Lohmann

Congratulations Andrew and Ryan

$20

Kathryn F

Go Team Oskar!

$10

Rhys Herbert

The Sydney Children's Hospitals Foundation raises funds for Sydney Children's Hospital, Randwick , The Children's Hospital at Westmead, Bear Cottage, the Newborn and Paediatric Emergency Transport Service (NETS NSW) and Kids Research