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Dainere's Rainbow Brain Tumour Research Fund

By Dainere'S Rainbow

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Dainere's Brain Tumour

A little about the type of brain tumour that Dainere had, hers was catergorised as high risk.

Medulloblastoma (PNET) is the most common brain tumour of childhood, representing about 20% of all paediatric brain tumours. They are most common in children between 4 and 10 and are slightly more common in boys than girls.

These tumours typically arise in the middle of the cerebellum, interfering with the flow of cerebrospinal fluid and causing hydrocephalus. Medulloblastoma is highly malignant and aggressive and can spread to other parts of the brain and spine through the cerebrospinal fluid.

Treatment for Medulloblastoma is usually surgical removal, followed by high doses of radiation of the entire head and spinal cord and high dose chemotherapy with stem cell rescue.

Medulloblastoma is classified as low or high risk with lower survival rates for high risk patients and a greater chance of a recurrence.

Recurrent Medulloblastoma has long been considered universally fatal. In spite of attempts to improve its treatment, only rarely have long term survivors been documented in the world's medical literature, there is no established treatment for its recurrence.

A donation to Dainere's Rainbow gives hope of improved outcomes for all children diagnosed with this most insidious disease.

September is Childhood Cancer Awareness Month

September is International Childhood Cancer Awareness Month. It is represented by a Gold Ribbon. To elevate awareness of childhood cancer we encourage everyone to wear or display a Gold Ribbon throughout the month.

Everyday three parents will hear the devastating words "Your child has cancer". Paediatric brain cancer is the number one disease killer of precious children in Australia.

It is only through community funding that research can continue to give children diagnosed with this insidious disease the chance of survival. Every single child deserves to live a long and happy life, so this September please consider giving to give hope and create change.

About Dainere

Dainere Monique Anthoney was born on the 8th February 1998 a happy, healthy baby. Then her world was turned upside down in 2009 when she was diagnosed with High Risk Medulloblastoma, she endured a ten hour surgery, high dose radiation and high dose chemotherapy with autogluous stem cell transplants. Then in February 2012, she suffered an inoperable and incurable recurrence of the disease in her spine, with palliative care being the only treatment available and tragically on 24th June 2013 she had her precious young life stolen by this horrific disease.

Dainere was the most courageous, selfless and inspiring young person you could ever meet, she worked passionately and tirelessly during her short life to advocate for and to elevate significant awareness and funds for research for paediatric brain tumours. Her greatest wish in life was that no children in the future would have to suffer as she did and that one day a cure for this horrendous disease will be found.

Dainere’s Rainbow Brain Tumour Research Fund maintains a lifetime commitment to helping eradicate this number one cancer cause of death in children. We are dedicated to raising significant awareness of paediatric brain tumours and raising money to fund crucial brain tumour research at Sydney Children's Hospital Kids Cancer Centre in memory of and as a legacy to our most beloved daughter and sister, Dainere and hopefully seeing her greatest wish in life become a reality.

Thank you to my Supporters

$246.9k

Anonymous

$300

Robert Jaensch

Keep up the great work

$104

Anonymous

$100

Corey Goodchild

$100

Alison Heath

In memory of Dainere whose thoughtful insights, radiant smile and selfless fortitude lit up our English class.

$100

Anonymous

$50

Ellen Newhouse

Remember my beautiful grand daughter on the anniversary of her passing. Taken too young but she did leave many precious memories.

$20

Anonymous

Every little helps

$5

Anonymous