The Bright Alliance: Making ground-breaking healthcare ‘the new normal’
The Bright Alliance building is a place where ideas come to life by bringing vital services together under the same roof.
It’s a place where we work towards cures for the most debilitating and complex chronic diseases and it’s a place where research and treatment work together in harmony, so that we can better diagnose and treat sick patients at Sydney Children's Hospital, Randwick, just like Charlie (watch his story below).
Equipped with world-class facilities and expert staff who can provide age-appropriate care, our young patients will feel empowered to take control of their own health and develop the ability to manage their condition. Ultimately, patients can have a life that isn’t defined by their illness.
Give the gift of a bright future and donate now to help make ground-breaking healthcare ‘the new normal’ for sick and injured children.
At just four months old, Charlie was brought to our Emergency Department by his mum, Rosie, as he was suffering from unusual spasms.
“His whole body would turn rigid and his arms would go up,” says Rosie. “His eyes would water uncontrollably.”
Following an MRI, Rosie was told that Charlie had Tuberous Sclerosis Complex (TSC) – a rare genetic disease that causes benign tumours to grow on vital organs such as the brain, heart and kidneys.
TSC affects everyone differently. Since the day Charlie was diagnosed, he has been continually afflicted by debilitating seizures.
“When he was a baby he could have ten seizures in a row and then he would just be inconsolable until he fell back asleep. It was agonising to see,” Rosie remembers.
“The facilities within The Bright Alliance will be critical for Charlie,” says Rosie. “He will get a better understanding of how to manage the TSC so that it doesn’t impact his later life.”
- Rosie, Charlie's Mother
Transitioning to the next phase
Charlie is now 17 and he’s received outstanding care at Sydney Children's Hospital, Randwick throughout his childhood, but he is now approaching an even more challenging time in his life.
“Now that Charlie’s a teenager the seizures have started to be triggered by things like exercise or late nights,” explains his mum. “He wants to do normal things for people his age, like learn to drive, surf at the beach and go to the gym, but the TSC often prevents him.”
As Charlie transitions to the adult healthcare system, he’ll require specialised support to ensure he feels empowered to take control of his own condition. The Bright Alliance has the world-class services he needs.